Just lupus, how do I manage these symptoms?

2024.11.25 15:40 faallus11 Just lupus, how do I manage these symptoms?

Hey everyone,
I already posted this exactly in another community.
I am 26F. I have had an unknown connective autoimmune disease since I was about 10. First, it presented as very round, painless, nodules. I didn't have any other major symptoms back then, regular energy levels. After 12 years I was diagnosed with Cutaneous Lupus.
BUT I have many weird symptoms that come and go.
-Last year I had, what I know consider a flare, a long episode with unbearable back pain. I couldn't eat many things, such as bread and wheat products made me feel sick, even just thinking about them. Same with sugary drinks and sweets, even though I enjoyed them before. Drinking a regular coke would make my brain fog so bad, I couldn't do simple additions in my head. With this came horrible heat intolerance, especially in the summer. I then can't even stand a bit of sun hitting my face or body, even in the car. Makes em instantly feel unwell. Even in winter, when the heater is on it makes me instantly unwell, I have to go outside to cool off, otherwise I can't think and feel awful.
I also have these recurring pains under my ribcage, everywhere in the stomach. The ultrasound was clear, a CT showed enlarged lymph nodes.
Many things make me extremely bloated, to the point that my stomach sounds like it's talking to me. I haven't been able to figure what is causing it or what could help.
Almost everyday I get a moment where I get extremely hungry and then weak directly.
Other more minor symptoms, that actually don't impact my life that much or I learned to live with them: -freuqent headaches -nausea -virtigo -neck pain -pain in many joints -tailbone pain -anxiety -depressive mood -night sweats from time to time, but not too often
I am on MTX and Pregabalin, just started Benlysta.
Is this all related to cutaneous Lupus? I have gotten much of blood work and other tests. I am getting a colonoscopy in two weeks.
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2024.11.25 15:40 Aware-Armadillo-6539 Maguire v Wilson

Dont wanna be the one to scream match fixing BUT what on earth is maguire doing out there?? He’s missing these pots by miles.
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2024.11.25 15:40 Routine-Pumpkin-1908 Travelling competitiveness?

Anyone else here feel a bit down when others seem to travel more than you and get competitive around it? I have been traveling more recently and I've found I get a bit jealous when others seem to out-travel me. Travelling makes me feel better about myself and my life somehow
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2024.11.25 15:40 BatOpen756 Swiss national

Can I work for the ECB, if i only hold a Swiss passport ?
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2024.11.25 15:40 Whatisittou Prince Harry would be among guest speakers for The New York Times Unveils Mainstage Interviews at Annual DealBook Summit on Dec. 4

Prince Harry would be among guest speakers for The New York Times Unveils Mainstage Interviews at Annual DealBook Summit on Dec. 4 https://www.nytco.com/press/the-new-york-times-unveils-mainstage-interviews-at-annual-dealbook-summit-on-dec-4/
Among the interviewees: Sam Altman, Jeff Bezos, Bill Clinton, Alex Cooper, Sundar Pichai, Jerome Powell, Serena Williams and more.
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2024.11.25 15:40 Ok-Percentage809 Helpp!!

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2024.11.25 15:40 lwanan trading nfr uni for 4scrolls & adds

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2024.11.25 15:40 Gurkenlos Wie kann ich meinen Bruder bei seiner bachlorarbeit unterstützen?

Hey Leute
mein Bruder macht gerade seine Bachelorarbeit in Psychologie, er hat ein schwieriges thema bekommen. Er braucht Hilfe ich kann ihn da aber leider nur wenig bis garnicht unterstützen. Ich bin für ihn da da wir beide unter Depressionen leiden aber er bräuchte halt jemanden der ihm wirklich bei der arbeit helfen kann. Könnt ihr mir weiterhelfen?
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2024.11.25 15:40 Parking-Dust-6650 Hi, I want to do Analysis on this part can you guide me

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2024.11.25 15:40 Caveman_man :)

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2024.11.25 15:40 RealIG57 Abel is UNABEL to speak now!!

Abel is UNABEL to speak now!! Man if someone knows that guy in person, go check if that mf is alive. He prolly tripped or something... I mean he is so quite for like 5 days and earlier was on Nitro doing every BS he could think of.
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2024.11.25 15:40 BroMandi [Walmart] Air Wick Plug-in Scented Oil Warmer Advanced Gadget + $4 Walmart Cash [Deal: $4, Actual: $5.99]

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2024.11.25 15:40 TheRumpledOne 20241125 TRO TRADING WEEKLY OPEN AND GAP

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2024.11.25 15:40 bludvls07 Highlighting Everything

I’m using STC and about 4 chapters in (currently on State Regulations Governing IA and IAR) and feel like I’m literally highlighting the whole book as I read through it. It feels like every section has a hundred bullet points or sub points. How the hell do you get through all of this reading and remember all of these points?
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2024.11.25 15:40 PeriwinkleExpress Case of Compassion Wine Fundraiser for Feed Nova Scotia

From the Feed Nova Scotia website:
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2024.11.25 15:40 DaDocDuck What is this?

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2024.11.25 15:40 cs458ds458 Need To Sell

Single mom here, really truly struggling. The only thing I have of any value is my car, and I’m not sure how much it’s even worth. Green 2 wheel drive 2013 FJ with high mileage, 180,000. Also I’ve recently quit smoking, but it has been smoked in previously. I just bought tires 2 months ago, but I don’t think they are anything fancy. I had a tire blow out over the summer, so even the spare is new. Can someone just tell me the best place to get the value of this car? My husband usually did all this type of dealing, but we are now going through a divorce.
Thanks for any help. I’m really trying to make myself not go to one of those title pawn places, but it’s rough out here!!
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2024.11.25 15:40 Laylas_Magical_Tarot Holiday Predictions!

Holiday Predictions! submitted by Laylas_Magical_Tarot to Spiritual_Energy [link] [comments]


2024.11.25 15:40 Macaulicauqim Alguém conhece algum um grupo pra compra e venda de fones usados?

Me indiquem
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2024.11.25 15:40 Thatonedregdatkilyu Lesbians who get their eye stabbed out on screen at the end of the story.

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2024.11.25 15:40 DE4N0123 Any advice for dealing with swimmer’s tail?

Any advice for dealing with swimmer’s tail? Took our 14 month old lab swimming for the first time yesterday in an indoor pool. He really enjoyed it after overcoming his initial nerves! Sadly though it seems that today he’s come away with swimmer’s tail as it’s seemingly stuck in a downward position and he hasn’t wagged it at all! I was quite sad not to get my usual waggy tail greeting this morning.
From what I’ve read online (and from talking to a woman on my street who also owns 2 labradors) it doesn’t seem to warrant a visit to the vet and should heal on its own. He isn’t whining or yelping and he isn’t protesting when I try to touch him around that area but I’m just wondering if anyone has any advice for speeding up the healing process/anything I can do to avoid making it worse? As a precaution he’ll be getting shorter walks this week and I’ll try to encourage him to chill out in his bed a bit more than usual. Thanks!
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2024.11.25 15:40 Atlasfitness 25 1.5year lifting/cutting

25 1.5year lifting/cutting Last cut got me down to 212lbs taking a maintenance break but should I try to lean out more before bulk?
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2024.11.25 15:40 rtmxavi Im doing my part lol

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2024.11.25 15:40 benoutof10 Pabst Blue Ribbon - UK stockists

Anybody any good sites / links where I can get PBR tall boys in UK?
THANKS
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